The challenge

Pediatric patients with multiple complex diagnoses have an extensive array of care providers, each holding a small piece of the medical story. The systems that hold patient medical information exist in separate and disconnected silos and lack meaningful organization. Currently no complete and consumable view of the patient story exists so the burden is on parents to carry and communicate their child’s story. We set out to envision a better way.

The result

Co-design workshops with each user group in the circle of care focused on understanding the unique communication and synthesis challenges faced by parents and providers in the sharing of a patient story that is always changing. Analysis of co-design data surfaced key themes, storytelling components, family contexts and primary scenarios which were then synthesized into North Star goals ensuring a meaningful experience. The vision was brought to life through scenario-based prototypes including a mobile app for parents on the go and a storytelling view for providers to understand the current situation and meet families where they are at.

My contribution

As the lead on this project, I designed and facilitated the co-design sessions, analyzed and synthesized the insights, and created storyboards to define a set of meaningful scenarios for prototyping. I collaborated with a visual designer on the creation of the interactive prototypes for both a parent mobile app and a provider desktop tool. Both prototypes were presented to Seton providers and patient families eliciting tears of joy from all involved. The product is now in development.